A mum had to battle for five months to convince doctors her one-year-old daughter had a brain tumour.
Jade-Marie Watson says medics failed to listen to her and partner Josh Middleton despite several appointments about the toddler's appointments.
Tiny Sienna-Rose Middleton went through months of A&E trips before a doctor ordered the MRI scan which found a golf ball-sized tumour in the back of her head.
Jade, 23, from Broxtowe, Nottinghamshire, said: "It has been a huge slap in the face, because this tumour could have been growing for the past year."
Sienna's tumour was the size of a golf ball when finally found.
Jade said: "There seems to be a huge gap between parents and doctors, and I just think we need to be listened to more.
"Sienna has had three A&E trips and I've made four 111 calls as well as countless health visits.
"They have all failed Sienna."
Starting around November last year, Sienna, who already had a double squint, started to have problems with her eyes shaking.
Jade added: "Her mobility was regressing too, but no matter who we spoke to about our concerns, we weren't listened to.
"She became extremely sick after having her injections in January, sleeping all the time, but our GP recommended Calpol and rest.
"We struggled to get someone to recognise our worries."
Sienna was diagnosed with gastroenteritis twice and prescribed two different courses of strong antibiotics.
Despite frantic calls from the parents about Sienna's behaviour, such as when she couldn't lift her head from her shoulder, and not being able to walk, crawl, or even sit upright, medical professionals said it was down to a weak immune system.
It wasn't until May, when Sienna misjudged her movement and fell off the sofa, that Jade felt she couldn't wait anymore.
"She bumped her head and her eyes rolled back and this time I didn't bother phoning, I just went straight in," she said.
"Again, I could see they weren't believing what we were saying despite all the symptoms previously."
But one doctor took a different approach. She wrote down notes, and measured Sienna's head.
Jade added: "She demanded an urgent MRI scan, and within two hours, we got the devastating news about the tumour.
"There was a feeling of shellshock as well as relief that we finally had answers, and could start to move forward."
Sienna had 650ml of fluid drained to reduce the swelling, followed by brain surgery which managed to remove 95 per cent of the tumour.
The remaining five per cent was considered too risky, and can only be targeted with chemotherapy.
"Sienna has been officially diagnosed with stage four aggressive medulloblastoma," Jade added.
"Considering the circumstances, we have great support and the nurses have been fabulous.
"Sienna will have to recover from the surgery before the next phase of treatment can begin.
"She has had to relearn how to sit and eat, but she has never stopped smiling. We're just taking each day as it comes."
Sienna was reunited with her sister, Alayiah-Mai, four, when the family were allowed to go home before chemotherapy starts.
Jade said: "There has been a lot of tears and frustration. The idea that parents don't know best has to stop. Their voices need to be heard."
Jade has been documenting Sienna's journey through Instagram and sister-in-law Mercedes Middleton has set up a fundraiser to try and get Sienna to Disneyland and meet her favourite character, Moana.
Jade and the family have said they want to pursue a formal medical complaint at a later date.
Andrew Marshall, divisional director for family health at Nottingham University Hospitals NHS Trust (NUH) said: "I'm sorry to hear that Sienna-Rose's family feel that there have been shortcomings in our care.
"We welcome the opportunity to meet with the family to discuss and listen to their concerns, and wish Sienna-Rose the very best in her ongoing recovery."
A spokesman for Nottingham City CCG said: "We treat all complaints by patients and their families extremely seriously and would encourage the parents to contact our Patient Experience Team so that we can investigate the issues raised with local healthcare providers."
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